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Integrating Special Populations

What is this Module?

The Integrating Special Populations (ISP) module, in partnership with the Community Engagement (CE) and Liaison to Recruitment Innovation Centers (LRICs) modules, will develop IRB-approved policies and procedures to enhance the recruitment of 1) children from underserved populations; 2) fetuses and their mothers; and 3) children with rare genetic disorders into CTR studies. The resulting best practices will be shared across the CTSA Network to facilitate multi-site Clinical and Translational Research (CTR) studies focused on these special pediatric populations.

The ISP Module serves the following aims:

  • AIM 1:   Improve participation of special populations in child-health, transitional (to adulthood) and longitudinal CTR by developing, implementing and disseminating an educational program focused on minorities and underserved populations – EDUCATION INITIATIVE.

  • AIM 2:   Enhance CTR studies in fetal / maternal medicine by creating a fetal clinical research network that incorporates best practice guidelines and fosters the utilization of novel EHR tools for screening, enrollment, and follow-up of participants – ADVANCE FETAL/MATERNAL RESEARCH.

  • AIM 3:   Enhance CTR studies in rare diseases by developing best practices and fostering the utilization of novel EHR tools for screening, enrollment, and follow-up of participants – ADVANCE RARE DISEASE RESEARCH.

  • AIM 4:   Disseminate best practices for recruiting fetal, child, and adolescent participant recruitment at the hub and across the CTSA Network – INTEGRATING CHILDREN IN CTR.

Who should I contact for more information?

Please visit the CTSI-CN Faculty and Staff Directory to seek the staff member(s) responsible for this resource.

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