What is this Module?
The Integrating Special Populations (ISP) module, in partnership with the Community Engagement (CE) and Liaison to Recruitment Innovation Centers (LRICs) modules, will develop IRB-approved policies and procedures to enhance the recruitment of 1) children from underserved populations; 2) fetuses and their mothers; and 3) children with rare genetic disorders into CTR studies. The resulting best practices will be shared across the CTSA Network to facilitate multi-site Clinical and Translational Research (CTR) studies focused on these special pediatric populations.
The ISP Module serves the following aims:
AIM 1: Improve participation of special populations in child-health, transitional (to adulthood) and longitudinal CTR by developing, implementing and disseminating an educational program focused on minorities and underserved populations – EDUCATION INITIATIVE.
AIM 2: Enhance CTR studies in fetal / maternal medicine by creating a fetal clinical research network that incorporates best practice guidelines and fosters the utilization of novel EHR tools for screening, enrollment, and follow-up of participants – ADVANCE FETAL/MATERNAL RESEARCH.
AIM 3: Enhance CTR studies in rare diseases by developing best practices and fostering the utilization of novel EHR tools for screening, enrollment, and follow-up of participants – ADVANCE RARE DISEASE RESEARCH.
AIM 4: Disseminate best practices for recruiting fetal, child, and adolescent participant recruitment at the hub and across the CTSA Network – INTEGRATING CHILDREN IN CTR.
Who should I contact for more information?
Please visit the CTSI-CN Faculty and Staff Directory to seek the staff member(s) responsible for this resource.